I'm honored to have my work included in Voices Confronting Pediatric Brain Tumors and in Narrative Inquiry in Bioethics, published by Johns Hopkins University Press.
This publication examines the total experience of the journey with this disease, and includes my story, Prepping for the Day You Hope Never Arrives: Facing Recurrence, page 29.
Visit www.nibjournal.org/news/voices.html to download this open access collection.
Following the release of the Voices publication it was also a great honor and sincere privilege to be invited to sit on a panel, speak and read my story at the ASBH American Society of Bioethics and Humanities Conference.
Since I've been writing and speaking in other genres and venues, and away from the pediatric brain tumor world for the past 10 years, I felt like the fairy godmothers must have tapped me with a magic wand, leaving me eloquent and able to speak on a tender topic far beyond my usual ability. I’m sure this must be because my fellow panelist, a beautiful and articulate young woman who is a pediatric brain tumor survivor, spoke and rode on the wings of grace and presented a paper that was far beyond excellent.
I am deeply appreciative for our outstandingly good audience, and a deep bow, many thanks, and grateful acknowledgements to the editors, to my fellow panelists, to ASBH, and Johns Hopkins University Press.
Fire is a story waiting - Chumash Country July 6, 2018 A windy night, hot, low humidity Fire travels down the hillside We evacuate, to the ocean, look out to sea I center down...